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The Ethical, Legal and Social Implications (ELSI) Working Group was established for the development of the ELSI component of the Human Genome Project. The Ethical, Legal, and Social Implications (ELSI) program was founded in as an integral part of the Human Genome Project. The mission of the ELSI. ELSI grants also fund education in the science and the social implications of the genome project. A joint NIH-DOE working group has been established.

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The purpose of GWAS is twofold:. New techniques in medicine – this looks at the effects of genetic testing on individuals, families and reports the latest results to medical services.

Examples of topics that fall under such ELSI programs include: Genetic testing of adults, children and foetuses – the different methods of genetic testing for each type of individual raises different questions, such as “do parents have a right to screen a child for a disease if the result may affect the child’s prroject well-being? Education – this provides ordinary people with knowledge on genetics and relates ELSI issues to health professionals, policy makers and the general public.

Does “improving” someone’s life include disease symptom reduction or cosmetic improvement e. Privacy of genetic information – it is unjust for medics e.

Ethical, Legal, and Social Implications (ELSI) of Genome Research: ELSI of Genome Research

Home What is Genomics? However, there are many questions raised about the information it produces, such as Genetic Variation – Self-perception and society’s perception of individuals based on genetic differences Genetic Privacy – Ownership and control of genetic information; use of genetic information by insurers or employers Gene Patenting – Effect of patenting of DNA sequences on accessibility of data and materials Genes and Illness – Individual susceptibility to specific illnesses, such as cancer Genetically Modified Organisms – Safety of genetically modified foods.


Is it possible to own something that is present in all humans – is a gene present in an individual theirs or does it belong to the person who discovered it? This program ensured that potential ethical problems could be resolved as early as possible, before the information was placed into medical applications.

As long as the HGP information is being used in medical applications, ELSI will continue to play a large part in preparing that information with guidelines for use on the public and how to prevent abuse of elsj knowledge.

Psychological issues – those specifically associated with being diagnosed with a particular gene These potential ethical problems included: Fairness in its use by the public – schools, employers and insurance companies must be sensitive to the genetic information and must not unfairly judge individuals based on their genetic status.

Genetic research issue s – this area focuses grnome ethical issues such as “informed consent” written permission from the person being treated and analyses genetic researchers’ aims, methods, and reports of their results.

This is called “genetic discrimination”. Examples of topics that fall under such ELSI programs include:. Search this Guide Search.

What is ELSI? | EMBL-EBI Train online

Ethical issues concern what is morally correct and good in the projct, legal issues talk about how the law should protect the public’s rights and social issues outline how ALL of society will be affected by events. Explore the connection between specific genes genotype and their outward expression phenotype 2.


Gene patenting – the issues surrounding the legal procedure of claiming “ownership” of a particular gene or region of DNA. Help identify genetic risk factors for the development or progression of specific illnesses. The HGP is often called the cure for many genetic diseases, because now they can use its information for treatment in medical care.

The purpose of GWAS is twofold: Genome-wide association studies GWAS are used to analyze genetic differences between people with specific illnesses and healthy individuals.

The Human Genome Project – What are the consequences?

Privacy and equality of genetic data – this program looks into what certain genetic information means as well as stopping information abuse or misinterpretation. ELSI of Genome Research This guide provides resources that will help the user understand the ethical, legal, and social implications ELSI of genome research–research into the genomes of humans, plants, and other organisms.

Explore the connection between specific genes genotype and their outward expression phenotype. Jan 25, 5: Among other topics, this guide covers gene patenting.